The Memoir Monday feature will be posted every other Monday.
This memoir writing is tough stuff. Many of my online friends are from a circle of published or soon-to-publish memoir writers. Most are based on hard subjects; illness and injury, death by disease or suicide, and abuse or neglect. You have to wonder why these memoirs are so widely read. At first glance those subjects are sad or depressing.
Why do we read them? I have always read memoirs and biographies. Sometimes I’m drawn in by pure curiosity, other times the author is covering an experience that I have had, or someone close has had. I want to know how they got through it. I want a blatant or even a subtle message of hope. Yes, hope.
The author lived to write about it, so maybe they have a secret of survival to share with me. Maybe they write so well, with that just-right stroke of humor, that I will be whisked away on their magic carpet for a few hours. I hold onto the hope that the author not only survives, but thrives after their crisis. Hope. I read memoirs for hope.
Hope may also be the reason that I keep hitting delays in my own memoir. August will be five years since Paul’s death. The memoir keeps pulling me back to the hard memories, when I am beginning to see the light of happy memories of Paul, in my everyday life. Yet…we both truly wanted to share our journey with others. We wanted to offer help along the way, for others in a health crisis, and we wanted to offer hope.
That is why I took on Memoir Mondays. I need to get this show on the road! I want to share this part of the journey with my community. I would love some feedback. I plan on exploring the topic of memoir, as well as some resource links for others who are writing memoirs. I’ll review some memoirs and announce it when my friends publish their memoirs. There is a large community of memoir writers online, so this won’t all be new information, but it will be what I think is interesting, and what I think you might enjoy.
In the mean time, here is some of the writing from within my own thick “Memoir” file.
A little background: My husband, Paul, spent a year in and out of hospitals, and in short-term housing near the main hospital, while fighting Acute Myeloid Leukemia and the Graft Versus Host Disease (GVHD) that he got as a result of a bone marrow transplant. During that year, I kept family and friends updated by way of an online patient journal on Care Pages. The following excerpts are from the memoir I’m writing, and were written during a few days of the last hospital stay:
June 13, 2009 Last night we had our best sleep in a long time. That’s good, but really, we’re funnier when we go sleepless in Seattle. Since yesterday, Paul has a bit of medication-caused edema in his belly and arms. He is still taking walks around the hallway loop, 10-40 minutes a day. He’s trying to do his exercises, but his belly argues with too much movement.
The biopsies from Tuesday’s procedure showed that Paul has adeno virus in his stomach now. They have added two more drugs to fight it, and more fluids before and after the new antiviral. It’s a toss up which is worse, the virus or the treatment. The other drug protects him from the damage the antiviral causes. What a viscous circle. They continue to try and balance his glucose, but it keeps dropping low , then spiking high. They began a new plan today and it has stayed pretty even so far. Through it all, Paul pushes on to do everything he can to get better.
Wishing we were there,
Patti & Paul
June 14, 2009 (warning–talk of needles) Paul is doing better today. His cramping belly has let up a lot. This was ATG day, when they pre-medicate him, which sends him off to a pretty deep sleep. This eve he had his weekly x-ray. We walked earlier, and will walk again later.
Tomorrow is ECP day, when he is hooked up to a machine in his room for 3 1/2 hrs. I can’t remember if I told you all about it or not, but they put a large needle in a vein, then strap his arm to a small board to keep it immobile and straight. They take blood out, separate it, take one layer and treat it with a photosensitive drug, then pass the treated portion under UV lights, then the machine puts it all back inside Paul’s vein. I have read some encouraging studies about this therapy, and we are hopeful that it can help clear out the GVHD.
Everything they are doing will take time, so we are settled in for the long haul. We’re up for it, though. Whatever it takes to get us back home and Paul healed.
Husky stadium is outside our window, so we have been watching the flurry of graduation taking place this weekend. It is surreal to watch all these young people celebrating starting out their lives full of hope, from a hospital room window, where we fight for Paul’s life.
Paul says to tell you all, “Hi!” and thanks for all the support.
Paul & Patti
More background. Paul passed away in our bed at home on August 9, 2009. Less than a month later, I started back with my emails to friends and family, while I tunneled through grief and estate issues.
Just tonight, I realized that I miss doing the updates about Paul’s health and our daily lives as fighters-for-his-life in a foreign land (hospital in Seattle). I thought that I could continue in a private journal, although the feedback is disappointing :>) So now I will write about me fighting for my mental life in this foreign land of Paul Is Gone. I will share the journey with you, because it is a habit that I still need.
I went to the doc today because a sore throat kept me up all night. I just have some infection in my throat and sinuses. With a few antibiotics I’ll be on the mend. I feel like hell, okay? I’m only up now, because Mark (family friend, lives close) signaled with his gate bell, that he was dropping off provisions, along with a mocha from my Aunt Judee. I couldn’t get back to sleep. I got up to see if no news was still good news—yes, it is! That means no evil attacks about the estate today. Someone spread the “rumor” that there was going to be a sale here this Saturday. Friends and family think the rumor was spread just to worry me, ahhhh, success for whoever started it!
From the long, wide deck overlooking the back yard and acreage; A little after 8 P.M., and here comes that moon, right on time. That was my entertainment last night; watching as Jupiter chases the moon up the hill and over the tree tops. Much better than My Name Is Earl—sorry, Paul, but anything is better than Earl. I just realized that the moon actually rises in front of, and then above Jupiter. When the moon finally takes the lead, Jupiter resumes the chase across the sky. That’s way better than that episode when Earl got stuck in jail. I do not miss television. I would watch unlimited hours to have Paul back.
Thanks for being here,